Monday 30th Oct

Some up and down days - the weekend was pretty good really.
On Saturday night Georgie just seemed to be more "there" than normal and so I stayed up until 1am reading to her when she went off to sleep. I think I've probably said before that as time has gone on we are more sure that Georgie can hear and probably even understand some of what we are saying. She often wakes up just from little touches now and sometimes from speaking to her she will open her eyes.

Been stinking hot up here lately but on Thursday we put down some turf so we now have a back lawn and James and I finished it IN THE RAIN - drizzled on and off during the night and we got 9mm of rain which helped no end. It cheered us up no end esp Ange.

Georgie has had episodes of rigors shaking lately maybe every few days her temp will suddenly flare up and she will shake. At the most recent blood test (that we were able to get a copy of that is) she still had a bacterial infection which she picked up in ICU at Westmead in 2007.

James enjoying the cricket season.

Em in Sydney on an art/history excursion overnight. Em and a friend and another fellow all getting baptised on Sunday.

This verse got me today.

Psalm 50 v 23
"Giving thanks is the sacrifice that honours me, and I will surely save all who obey me"

A few pics

Thought I'd put a few pics in for interest.

One is of Ange and Georgie at home going for a walk.

Another is of a mate praying for Georgie back at Westmead last year. (he had a son who is fine now who also had a trip to Westmead with hydro encephalytis and was in a coma for several days but was granted a miracle. The drs went in 3 times to take him to theatre for an operation and each time he sat up in bed. This unnerved the drs....)

The other is of one of the nurses at Westmead lovingly caring for Georgie.

Dear friends we thank you most sincerely for your continued support. We really value your continued prayer. I've been asked for a few specifics etc.
Dad said the other day God gives us grace one day at a time. Sometimes it is hard to feel it and other times there is a sudden peace which takes you beyond yourself.
We are asked "how are you bearing up" to be honest only just at times - there is no solution at hand really. People ask is it time consuming? Yesterday although we have lived in our house for nearly a year i said to Em "can we get TV out here?"-made me realise how infrequently we sit down.
It is hard and often continuous work with little respite. The respite we do get is from the Dubbo base hospital when Georgie is sick enough to warrant going in there and even then it is very stressful because it is always another case of life and death and talks of quality of life and suffering etc. and all of the worrying that comes with that always wanting to do what is right and not just what is easy or convenient for drs however nicely they try to put it all.
These times and talks are very demoralising and so we hang on at home until it is either completely beyond us or just plain unfair to Georgie. She escaped dying again last week when she was in there-against all expectations from medicos really. Nurses were very relieved to see her rally again and re-stabilise.
It is a cruel process and ange and i have been pondering lately the fact that we have not become nervous wrecks. esp as it was our 3rd night and day continuously with little rest. Georgie has just been so sick. Up at 3am the other morning I said to Ange "Now we are having fun!!!" Thank God for a sense of humour.
We have prayed all manner of ways and fasted and whatever else yet her life hangs by a thread it seems.
One thing we have become more certain of is her ability to be aware of what is going on so that she can be woken by touch or even sound and i think she can understand as well yet just cannot communicate back to us.
It tears our hearts out continually.
The strain is hard on Emily and James as well who have to watch her suffer sometimes. Yet Georgie must still be very determined to live. Drs say the whole medical world believe she has"superior genes" which we don't know about that, but sustained by prayer and by God for reasons not known to us we can only press on, believing that he who has begun a good work will see it through until the day of completion....To God be all praise.
The UnitingCare home help are a great help and reprieve to Ange and a real God-send. The head lady is always very positive and encouraging.

Friday

Georgie came home on wednesday afternoon and has been Ok. She battled off another round of whatever it is she has been fighting in hospital without any real intervention ie no anti biotics etc. We had long talks with drs which are very draining and against some predictions she pulled through again. She is just not ready to go anywhere that is all there is to it. She is in the Lord's hands and we trust Him as her Father so we must just be resolved that He has these things in His hands for whatever reason. Still we pray. I think we have almost learnt what it is to pray continually, even though sometimes it is not much more than a "Lord; Georgie..."
Took her for a walk yesterday evening - in the wheelchair. (I have to add this as a girl from school thought I meant Georgie was walking by herself and told her whole class!) If only.
"The Lord is faithful.... He will strengthen and protect you".
2 Thessalonians 3:3.

Monday afternoon

Hi went in to see Georgie this afternoon and she was pretty calm and peaceful.
Nurses said "I think she's rallied again".
Head nurse said "don't worry she does this!" She is the most unphased person and so cool and never seems to tire of us turning up with Georgie on heaven's doorstep time and again.
She still has a bit of a temp but is tolerating feeds again pretty well so possibly come home again in a day or two.

Monday

Georgie went into hospital on Thursday afternoon after becoming really unstable.
She probably has several infections and who knows what else.
She is up and down and it has been a case where she could go either way.
Drs say at times she is deteriorating then at others she is rallying etc. then we were told she may be sent home. We really don't know.

wed

Tuesday OK

this morning rough this afternoon OK.

Just trusting God.

Monday 9th

Just rang Ange who said Georgie had a really good day.

Hi there a quick update. Georgie been at home again since last saturday. She has had a few ups and downs and been less stable than normal. Things are not really right and we don't know just why or what it is.
Her care has been very constant of late. (ie day and night)

"Of all the places God lives our humble human heart is the most precious to Him. (Robert Street - Holiness Unwrapped)
(Psalm 51 10- 12)
Create a pure heart in me, O God and put a new and loyal spirit in me....

Tuesday 3rd

Appreciate your prayers for strength. Things are very difficult.