Wednesday, February 2, 2011
Friday, January 21, 2011
Friday
Well no sooner did i write that message yesterday than i got home yesterday and found Georgie with a temperature and chesty again!
This frequently happens though why this so suddenly we don't know. She has been good and there hasn't been anyone around with any wogs. It is always so hard to see her getting sick just when you think she is going well.....
I just heard this verse again
Matthew 21v 22 If you believe, you will receive whatever you ask for in prayer.
This frequently happens though why this so suddenly we don't know. She has been good and there hasn't been anyone around with any wogs. It is always so hard to see her getting sick just when you think she is going well.....
I just heard this verse again
Matthew 21v 22 If you believe, you will receive whatever you ask for in prayer.
Thursday, January 20, 2011
Thursday 19th
Dear friends we are all well and have been enjoying the Christmas break.
Greg and James went fishing with his cousin Pete and son Scott to Adaminaby for a few days. 4 fish in all and had a great time. We went for a walk up to Kosciusko one day which was fantastic. It was a beautiful clear day.
People often ask us how is Georgie? and has there been any change? can she talk yet? etc. so mostly we just have to say no not really. From time to time she is much more aware like yesterday when we were doing some stretching exercises with her and she was trying to sit forward and swinging her arms to let us know she was feeling it. So yes she doesn't just lie there unaware. Sometimes she will be agitated and if i sing to her she calms down.(at least someone appreciates my singing!)
The weather has been hot during the days but is mild enough in the late evenings to take her for a walk in the wheel chair down the road. It was beautiful yesterday in the late evening with the sky all purple and the moon already up, horses running in the paddocks and the reflections in the creek still full of water.
Some things to pray for:-
God's continued peace over our house.
The nurses who have become a bit familiar and lazy who cause tension at home.
For home care support to continue (there is some talk that some of the funding may dry up)
For Georgie to improve
Thankful that like last Christmas Georgie has had a good month.
Em as she leaves home and goes to Vanuatu on the 7th Feb
We are thankful to all who pray and friends who encourage us.
Ange and i have been reading Spugeons devotions which are very encouraging reminding us that God is a good God and we can rely on Him and that He answers prayer.
Greg and James went fishing with his cousin Pete and son Scott to Adaminaby for a few days. 4 fish in all and had a great time. We went for a walk up to Kosciusko one day which was fantastic. It was a beautiful clear day.
People often ask us how is Georgie? and has there been any change? can she talk yet? etc. so mostly we just have to say no not really. From time to time she is much more aware like yesterday when we were doing some stretching exercises with her and she was trying to sit forward and swinging her arms to let us know she was feeling it. So yes she doesn't just lie there unaware. Sometimes she will be agitated and if i sing to her she calms down.(at least someone appreciates my singing!)
The weather has been hot during the days but is mild enough in the late evenings to take her for a walk in the wheel chair down the road. It was beautiful yesterday in the late evening with the sky all purple and the moon already up, horses running in the paddocks and the reflections in the creek still full of water.
Some things to pray for:-
God's continued peace over our house.
The nurses who have become a bit familiar and lazy who cause tension at home.
For home care support to continue (there is some talk that some of the funding may dry up)
For Georgie to improve
Thankful that like last Christmas Georgie has had a good month.
Em as she leaves home and goes to Vanuatu on the 7th Feb
We are thankful to all who pray and friends who encourage us.
Ange and i have been reading Spugeons devotions which are very encouraging reminding us that God is a good God and we can rely on Him and that He answers prayer.
Monday, January 3, 2011
Monday 3rd Jan
Happy new year to you all!
We had a lovely time at Kurrajong with Anges mum and dad at Christmas and not a single thing went wrong.
We were able to take Georgie down with us in the car which was about a 4 and a half hour trip. She handled it just fine.
It was great to be able to all go away together for a few days and was the first Christmas we have all had down there for 4 years as a family.
We took her for a couple of walks around Kurrajong. The climate there is so much more pleasant than Dubbo where it is often too cold, too hot or too windy to take a little girl prone to chest troubles for walks. So we made the most of it.
Some folks from Kurrajong Baptist came up to the house to meet her. They have been praying for her since the beginning. Thank you to those people who have sent us encouraging messages of continued prayer.
We are all enjoying being on holidays together and geting a lot done. Greg and James have almost finished building a shed together and so feeling a sense of achievement. It's good having Em and James around to help look after Georgie, who has been reasonably good for the past week.
Only 5 weeks until Emily heads off to Vanuatu for six months.
We had a lovely time at Kurrajong with Anges mum and dad at Christmas and not a single thing went wrong.
We were able to take Georgie down with us in the car which was about a 4 and a half hour trip. She handled it just fine.
It was great to be able to all go away together for a few days and was the first Christmas we have all had down there for 4 years as a family.
We took her for a couple of walks around Kurrajong. The climate there is so much more pleasant than Dubbo where it is often too cold, too hot or too windy to take a little girl prone to chest troubles for walks. So we made the most of it.
Some folks from Kurrajong Baptist came up to the house to meet her. They have been praying for her since the beginning. Thank you to those people who have sent us encouraging messages of continued prayer.
We are all enjoying being on holidays together and geting a lot done. Greg and James have almost finished building a shed together and so feeling a sense of achievement. It's good having Em and James around to help look after Georgie, who has been reasonably good for the past week.
Only 5 weeks until Emily heads off to Vanuatu for six months.
Monday, December 6, 2010
Can't think of much to say but maybe you will like to take a look through some photos?
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| My Pastor mate Mick from Nyngan. Mick is always full of the joy of the Lord. They planted this crop after prayer in faith and harvested the best crop of dryland sorghum ever heard of in this area. |
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| In ICU 2007 |
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| James Tackle of the match James tackled a 130 kg Islander!! |
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| The night we were evacuated by fire from Ronald Mcdonald house |
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| Georgie's room at Westmead |
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| Ron ministering to Georgie |
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| Memorial Statue at Westmead for all the children |
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| A day out in 2008 |
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| Ros playing for Georgie in ICU |
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| In Dubbo hospital April 2009 |
Sunday, December 5, 2010
Hi there just thought i better put something down as it's been a month since the last post.
It is very wet up here. poor wheat farmers - so much ruined crop but so wet now after such a long drought. Creeks and rivers are full and flooding and with more wet weather coming who knows what will happen.
Em finished off her HSC. Thankyou to all who have been praying for her.
Georgie has been very unsettled for some weeks now and has required more medications than normal for seizures which is very sad.
At westmead a skin biopsy at their request was taken and we were told just a thin scar would be left but it opened up as the stitches dissolved early and so it will leave an ugly scar near her shoulder and still has not healed. The site where the central line came out is great and nothing but a small pink dot remains.
Most of the blood tests etc that were taken at Westmead showed that Georgie is probably in better health overall now than what she was when she left there two years ago.
Thursday, November 4, 2010
A quick trip to Westmead this week. Ange and Georgie flew down on Monday morning and I drove.
Em and James stayed back at Dubbo.
Tuesday evening Georgie had her central line out.
We were able to go in with her and i while they did the anaesthetic and into the recovery afterwards.
The surgeon said it all went very well and just a little tug and out it came. That part of the procedure he said took only about 48 seconds! No Adhesions. No clots. Very little bleeding - so was all very straight forward.
What a relief! We had a peace that all would be well although the Dubbo Dr had told me she could NEVER have it removed as it would have grown over and could not be taken out again Ever - would have to live with it for life, she would not handle the anaesthetic, she would bleed to death etc etc. There was such a peace at the hospital when we arrived in our room and for the whole time we were there. Some lovely friends we made down there kept us almost constant company, First Mirrie Dawes our dear sister was there just after Ange arrived - to make her feel at home and then Serah who now works in the theatre section, (Serah who once went to sleep so low in life and who received a vision of Jesus standing at the end of her bed showing the nail holes in his hands and who awoke changed and never been the same again), then our lovely friend Iris May from the volunteer police office in the hospital, also a strong believer came for a cup of tea. Kathy Bates a pastor from parramatta baptist came along also and encouraged us. (Parra Baptist still pray for Georgie and us every week). Surely they will be rewarded for their faithfulness. Hospital staff came down from the CT ward where Georgie stayed for a year after she left ICU. Anges folks came down for the afternoon also.
The neurologist now the chief epileptologist came and did an examination of Georgie and organised an EEg scan and various blood tests etc. All in all it showed that she is in better health overall than when she left Westmead 2 years ago. A credit to Ange and the nurses up here and God who sustains her by His loving kindness. The 20 minute EEG scan showed that there is still lots of little epileptic firings going on in our little possums mind. Unfortunately not much else they can do with any medication but fiddle around the edges.
The Neurologist said that this kind of condition is becoming more widespread around the world yet they are still not much closer to working out the puzzle. What causes it , what does the damage and what could stop it. They are thinking more though that there is some kind of immune response to a virus. In all cases children are previously well - usually very healthy and all around the same age of 8 to 12.
He also said some positive things for us in that despite all that has happened to always talk to her as even what she has suffered she will still be hearing and probably understanding. He said there is no reason at all to assume that she cannot hear. (used to make me so mad when drs would stand over her and say all kinds of stuff about her dying etc etc)
He said the brain is just so complex that even say when one sense becomes damaged the other senses often then increase and that the brain is not always the same eg she will have periods when she does seem to be interacting and others when she's not. This was very affirming as we have often felt like there are days or times when she is "right there" and others when she's not.
Everything went to plan - the operation nearly didn't happen but some staff pulled some strings and made sure it went ahead.
They also got the OT's to come in and look aher hands and feet and make a consulting report to Dubbo to get them on the job to try to help her more.
The hospital staff just loved seeing Ange and Georgie again.
At 5am wednesday morning the Ambo's arrived at the hospital and took Ange and Georgie to the airport and they flew back home. Amazing. Down and back in less than 48hrs.
Well all a very positive time.
Thanks so much for your prayers.
Em and James stayed back at Dubbo.
Tuesday evening Georgie had her central line out.
We were able to go in with her and i while they did the anaesthetic and into the recovery afterwards.
The surgeon said it all went very well and just a little tug and out it came. That part of the procedure he said took only about 48 seconds! No Adhesions. No clots. Very little bleeding - so was all very straight forward.
What a relief! We had a peace that all would be well although the Dubbo Dr had told me she could NEVER have it removed as it would have grown over and could not be taken out again Ever - would have to live with it for life, she would not handle the anaesthetic, she would bleed to death etc etc. There was such a peace at the hospital when we arrived in our room and for the whole time we were there. Some lovely friends we made down there kept us almost constant company, First Mirrie Dawes our dear sister was there just after Ange arrived - to make her feel at home and then Serah who now works in the theatre section, (Serah who once went to sleep so low in life and who received a vision of Jesus standing at the end of her bed showing the nail holes in his hands and who awoke changed and never been the same again), then our lovely friend Iris May from the volunteer police office in the hospital, also a strong believer came for a cup of tea. Kathy Bates a pastor from parramatta baptist came along also and encouraged us. (Parra Baptist still pray for Georgie and us every week). Surely they will be rewarded for their faithfulness. Hospital staff came down from the CT ward where Georgie stayed for a year after she left ICU. Anges folks came down for the afternoon also.
The neurologist now the chief epileptologist came and did an examination of Georgie and organised an EEg scan and various blood tests etc. All in all it showed that she is in better health overall than when she left Westmead 2 years ago. A credit to Ange and the nurses up here and God who sustains her by His loving kindness. The 20 minute EEG scan showed that there is still lots of little epileptic firings going on in our little possums mind. Unfortunately not much else they can do with any medication but fiddle around the edges.
The Neurologist said that this kind of condition is becoming more widespread around the world yet they are still not much closer to working out the puzzle. What causes it , what does the damage and what could stop it. They are thinking more though that there is some kind of immune response to a virus. In all cases children are previously well - usually very healthy and all around the same age of 8 to 12.
He also said some positive things for us in that despite all that has happened to always talk to her as even what she has suffered she will still be hearing and probably understanding. He said there is no reason at all to assume that she cannot hear. (used to make me so mad when drs would stand over her and say all kinds of stuff about her dying etc etc)
He said the brain is just so complex that even say when one sense becomes damaged the other senses often then increase and that the brain is not always the same eg she will have periods when she does seem to be interacting and others when she's not. This was very affirming as we have often felt like there are days or times when she is "right there" and others when she's not.
Everything went to plan - the operation nearly didn't happen but some staff pulled some strings and made sure it went ahead.
They also got the OT's to come in and look aher hands and feet and make a consulting report to Dubbo to get them on the job to try to help her more.
The hospital staff just loved seeing Ange and Georgie again.
At 5am wednesday morning the Ambo's arrived at the hospital and took Ange and Georgie to the airport and they flew back home. Amazing. Down and back in less than 48hrs.
Well all a very positive time.
Thanks so much for your prayers.
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