Well Georgie has been more stable and relaxed again for about a week i guess.
Prayer points.
- Thank God for supplying more home help. We currently have a full lot of carers again and they are all experienced and nice. Please pray that this atmosphere continues.
- Ange is very run down lately.
- Em comes home in about a month now. (17th Aug) She still needs to select her subjects for Uni in Sydney next year and find somewhere to live etc. Big changes.
Thankyou for your continued interest in our family.
Blessings
Greg
Monday, July 11, 2011
Friday, June 17, 2011
Wednesday, June 15, 2011
Wed 15th July
Hi Georgie has been on the whole better of late than she used to be. She is coughing a lot the last few days again which is hard for her. Normally now unless she actually has a wog she is pretty settled and comfortable. We get her up in a special chair for about 6 hrs a day. She is more aware at times and definitely aware of our comings and goings and noises going on around her. Without the extra home help we find we can do the bare essentials for her but that's all. It is such a huge strain at times. It feels like our lives are shortened but God knows our feeble frame doesn't He? He provides so much. His word is so rich and so full of His love for us. Glory be to God for His faithfulness. He never tires, He does not sleep that He may watch over us. One day He will gather us all together like chicks under his wings. He cares so much you know In His very essence He is love. Slow to anger, abounding in love.
I've been building some fences at home and I was drilling right through a big iron bark post this morning and you know that tree had probably lived for fifty years and you could see all of the growth rings but then as I drilled through there would be hard layers and then soft layers. The years where the rings were close together were hard to get through and the tree had not expanded much. Those hard years made the tree tough.Then there were good seasons where the tree grew more quickly but they were softer. He spoke to me of the seasons in our lives, the hard times and the easy times and sometimes when we can feel we will almost die, (just like David said "my soul thirsts for you in a dry and weary land where there is no water") times when we battle just to get through but He keeps us nourished when we put our roots down into His good soil. Please keep praying for us.
Ange is a great mum.
We are missing Em a lot after 4 months now and her help too but know she is doing a great job over in Vanuatu. She is planning to go to Sydney Uni next year to study.
I've been building some fences at home and I was drilling right through a big iron bark post this morning and you know that tree had probably lived for fifty years and you could see all of the growth rings but then as I drilled through there would be hard layers and then soft layers. The years where the rings were close together were hard to get through and the tree had not expanded much. Those hard years made the tree tough.Then there were good seasons where the tree grew more quickly but they were softer. He spoke to me of the seasons in our lives, the hard times and the easy times and sometimes when we can feel we will almost die, (just like David said "my soul thirsts for you in a dry and weary land where there is no water") times when we battle just to get through but He keeps us nourished when we put our roots down into His good soil. Please keep praying for us.
Ange is a great mum.
We are missing Em a lot after 4 months now and her help too but know she is doing a great job over in Vanuatu. She is planning to go to Sydney Uni next year to study.
Friday, May 27, 2011
Friday 27th May
Hi I have just looked at this and found it has been a full month since I last wrote.
We were having difficulties with Georgie's breathing and with home carers.
For the last week Georgie has had one of her best weeks for a long time , very settled and no hiccups.
We are back to only two days care at present. I stayed home from work yesterday to look after Georgie so Ange could teach and it was good.
Georgie is growing now and putting on weight. She is getting too heavy for Ange to lift now.
Em is really enjoying her time in Vanuatu. James is growing and eating us out of house and home. He is working a couple of nights a week at a chinese takeaway and learning some good cooking skills.
We have a home bible study group which we have over every second Friday. Some of these folks we have been in the group with for 5 or 6 years. It is good.
We were having difficulties with Georgie's breathing and with home carers.
For the last week Georgie has had one of her best weeks for a long time , very settled and no hiccups.
We are back to only two days care at present. I stayed home from work yesterday to look after Georgie so Ange could teach and it was good.
Georgie is growing now and putting on weight. She is getting too heavy for Ange to lift now.
Em is really enjoying her time in Vanuatu. James is growing and eating us out of house and home. He is working a couple of nights a week at a chinese takeaway and learning some good cooking skills.
We have a home bible study group which we have over every second Friday. Some of these folks we have been in the group with for 5 or 6 years. It is good.
Sunday, May 1, 2011
1st May
Good morning and thankyou for your persistent prayers!
Georgie still has a cough but hasn't gone down with the chest trouble. We did have to put her on oxygen for a couple of nights about a week ago. It is heartening to know there are prayer groups who still pray for her each week and churches who still pray for us each week. We will never be able to thank them.
We are learning a lot about carers and home situations. A number of people have told us it ends up being more about them (the carers) and their needs than the client and the family. Originally it was nursing care, then we were told they were carers not nurses, making a big distinction over what they would or wouldn't do now we are told they are a respite service only allowing us to get out of the house and we need to be more considerate of them, cut them more slack, realise they have other clients and may not have the energy to do everything here, that technically they do not even have to do anything like shower her etc so essentially they are saying they will just do what they feel like, if they like and if we don't like it too bad. We have had our hassles with it all.
Carers using bad language on the phone in front of Georgie, upsetting the other kids, then complaining that the other children are dobbers. Using the time to organise her work rosters and then not getting other things done here, one staff member used to regularly steal toilet paper from us (don't ask me why!)Another recently turned up completely hung over an hour and a half late and spent the day sleeping it off, so i was late for work having to take a 1/4 day flexi day as a result. Some at times have just not turned up at all again affecting work. I don't know whatever happened to having a work ethic.
All this sounds like a whole lot of whinging but it all just hangs over our heads so at times we feel driven out of our own home. All the various affiliated agencies in town just support each other so you have no reply with anyone.
I am told that the Govt is moving towards giving the funds to parents and letting them organise their own home help.
We would value your prayers for wisdom, patience and a resolution to the ongoing strain caused by home care staff. I could go on but I won't. Satan has tried everything to get at us and this is just another way to cause trouble, strain and fatigue and bring it into our house and little Georgie who was never any trouble to anyone is right in the middle of it all. He has his fun but his days are numbered.
Ange had a few friends come over and watched the Royal wedding on Friday night.
Thankyou, sending our love.
Greg, Ange, Em, James and Georgie
For our struggle is not against flesh and blood, but against the rulers, against the authorities,against the powers of this dark world and against the spiritual forces of evil in the heavenly realms. Therefore put on the full armour of God, so that when the day of evil comes, you may be able to stand your ground, and after everything to stand. Ephesians 6 v 10 to 13
Why do we forget this ?
Georgie still has a cough but hasn't gone down with the chest trouble. We did have to put her on oxygen for a couple of nights about a week ago. It is heartening to know there are prayer groups who still pray for her each week and churches who still pray for us each week. We will never be able to thank them.
We are learning a lot about carers and home situations. A number of people have told us it ends up being more about them (the carers) and their needs than the client and the family. Originally it was nursing care, then we were told they were carers not nurses, making a big distinction over what they would or wouldn't do now we are told they are a respite service only allowing us to get out of the house and we need to be more considerate of them, cut them more slack, realise they have other clients and may not have the energy to do everything here, that technically they do not even have to do anything like shower her etc so essentially they are saying they will just do what they feel like, if they like and if we don't like it too bad. We have had our hassles with it all.
Carers using bad language on the phone in front of Georgie, upsetting the other kids, then complaining that the other children are dobbers. Using the time to organise her work rosters and then not getting other things done here, one staff member used to regularly steal toilet paper from us (don't ask me why!)Another recently turned up completely hung over an hour and a half late and spent the day sleeping it off, so i was late for work having to take a 1/4 day flexi day as a result. Some at times have just not turned up at all again affecting work. I don't know whatever happened to having a work ethic.
All this sounds like a whole lot of whinging but it all just hangs over our heads so at times we feel driven out of our own home. All the various affiliated agencies in town just support each other so you have no reply with anyone.
I am told that the Govt is moving towards giving the funds to parents and letting them organise their own home help.
We would value your prayers for wisdom, patience and a resolution to the ongoing strain caused by home care staff. I could go on but I won't. Satan has tried everything to get at us and this is just another way to cause trouble, strain and fatigue and bring it into our house and little Georgie who was never any trouble to anyone is right in the middle of it all. He has his fun but his days are numbered.
Ange had a few friends come over and watched the Royal wedding on Friday night.
Thankyou, sending our love.
Greg, Ange, Em, James and Georgie
For our struggle is not against flesh and blood, but against the rulers, against the authorities,against the powers of this dark world and against the spiritual forces of evil in the heavenly realms. Therefore put on the full armour of God, so that when the day of evil comes, you may be able to stand your ground, and after everything to stand. Ephesians 6 v 10 to 13
Why do we forget this ?
Friday, April 22, 2011
Sick again.
Hi sorry it's been a few weeks...
Georgie is sick at the moment - very chesty, coughing,noisy breathing etc. Ange is in bed with her reading to her now. We always get worried at these times.
We had to put her on oxygen this afternoon as well as some additional meds.
James is away on a fishing camp until Tuesday. It is very quiet here without Em and James.
Em's visa renewal came through in Vanuatu so she should be fine for a while now. She seems to be enjoying it all. Our contact with her is very limited.
We had a few days away last week down at the snowy and a nurse minded Georgie so Ange, James and I could all go. We came back on the Sunday 17th - Four years since Georgie went into Intensive Care at Westmead. Ironically (because of prior involvement through work) I was invited to attend a guest dinner at the Royal Easter Show on this same date.
There have been lots of "dates". On Angela's birthday (in 2007) we had a meeting with Drs who for the first time said they believed there was some brain damage.
On our wedding anniversary they told us they would be switching off life support. There were others too buut i've forgotten them.
On Georgie's birthday two years ago we had to take her to hospital with pneumonia spoiling her birthday and ange and the kids crying on the verandah as i drove her to town. The drs did not think she would make the night - but that was almost two years ago.
That was an awful but amazing trip. Georgie was in the back seat and it was dark and wet. There had been no time to get an ambulance and we did not have oxygen at home then.
As I drove up the road her breathing was bad and as i went up the hill i glanced in the rear view mirror and she had stopped breathing. I began to call out to the Lord and pray and then as clear as day into my head was the command "sing!" so I began to sing and she took a big gasp and began to breathe again. I sang all of the way to town and she kept breathing. When i got there i did not know how i would get her into the ward but as i looked across to the Hospital entrance somebody had discarded a wheel chair right in the doorway so i was able to grab this and wheel her down the hall. A nurse i knew happened to come past and helped me straighten her up. We took her into the ward and we did nothing but put her on just the smallest amount of oxygen. I lay in the bed beside her all night and prayed that God would do what he wanted to do. In the morning i went to church and after church the nurses said she had made a miraculous recovery. When we went into her room that familiar peace was there and she was discharged that day. They said pneumonia normally takes a fortnight to get over.
Well we thankyou again for your prayers.
Georgie is sick at the moment - very chesty, coughing,noisy breathing etc. Ange is in bed with her reading to her now. We always get worried at these times.
We had to put her on oxygen this afternoon as well as some additional meds.
James is away on a fishing camp until Tuesday. It is very quiet here without Em and James.
Em's visa renewal came through in Vanuatu so she should be fine for a while now. She seems to be enjoying it all. Our contact with her is very limited.
We had a few days away last week down at the snowy and a nurse minded Georgie so Ange, James and I could all go. We came back on the Sunday 17th - Four years since Georgie went into Intensive Care at Westmead. Ironically (because of prior involvement through work) I was invited to attend a guest dinner at the Royal Easter Show on this same date.
There have been lots of "dates". On Angela's birthday (in 2007) we had a meeting with Drs who for the first time said they believed there was some brain damage.
On our wedding anniversary they told us they would be switching off life support. There were others too buut i've forgotten them.
On Georgie's birthday two years ago we had to take her to hospital with pneumonia spoiling her birthday and ange and the kids crying on the verandah as i drove her to town. The drs did not think she would make the night - but that was almost two years ago.
That was an awful but amazing trip. Georgie was in the back seat and it was dark and wet. There had been no time to get an ambulance and we did not have oxygen at home then.
As I drove up the road her breathing was bad and as i went up the hill i glanced in the rear view mirror and she had stopped breathing. I began to call out to the Lord and pray and then as clear as day into my head was the command "sing!" so I began to sing and she took a big gasp and began to breathe again. I sang all of the way to town and she kept breathing. When i got there i did not know how i would get her into the ward but as i looked across to the Hospital entrance somebody had discarded a wheel chair right in the doorway so i was able to grab this and wheel her down the hall. A nurse i knew happened to come past and helped me straighten her up. We took her into the ward and we did nothing but put her on just the smallest amount of oxygen. I lay in the bed beside her all night and prayed that God would do what he wanted to do. In the morning i went to church and after church the nurses said she had made a miraculous recovery. When we went into her room that familiar peace was there and she was discharged that day. They said pneumonia normally takes a fortnight to get over.
Well we thankyou again for your prayers.
Sunday, April 3, 2011
All clear
Hi Georgie was taken to hospital on Thurs afternoon by recommendation of her Dr (who had not seen her but because the nurse rang her and said she was "deteriorating" - which was absolute nonsense. I honestly do not know what gets into their heads but as i was at work and Ange was teaching all i could do was say OK you get her there and then i'll come in later.
The xray showed there was no bowel obstruction and nothing to worry about. They wanted to keep her in overnight but i said "shes coming home" and after the Dr checked her out and looked at the scans again and the blood tests showed everything was OK they agreed there really was no point in keeping her in. What a waste of time and energy! the casualty nurses were so lovely though and made me cups of tea and so on. They really are such wonderful people.
However...... In the very next bed to Georgie in casualty was an old farmer friend of mine called Alan from Nyngan who had a stent put in his heart a few months ago and had a little scare on Thurs (which turned out to be nothing).
He waved and i saw who it was and we talked. He said is this the little girl that you've had all the trouble with? I said yes it will be 4 years in a couple of weeks and he said "that would really test your faith". I said yes - but do you know I love God more now than i ever did and i trust God more now than I ever did and he got tears in his eyes and we had a great talk. (He goes to the Lutheran church in Nyngan) He invited me out to his farm to have a look over some things.
After all that we eventually got home at 9.30pm, tired but happy in the Lord for the opportunity to talk with Alan. I had forgotten how many times these little upsets and delays in our days really are God working things out for good.
Thankyou all for your prayers.
The xray showed there was no bowel obstruction and nothing to worry about. They wanted to keep her in overnight but i said "shes coming home" and after the Dr checked her out and looked at the scans again and the blood tests showed everything was OK they agreed there really was no point in keeping her in. What a waste of time and energy! the casualty nurses were so lovely though and made me cups of tea and so on. They really are such wonderful people.
However...... In the very next bed to Georgie in casualty was an old farmer friend of mine called Alan from Nyngan who had a stent put in his heart a few months ago and had a little scare on Thurs (which turned out to be nothing).
He waved and i saw who it was and we talked. He said is this the little girl that you've had all the trouble with? I said yes it will be 4 years in a couple of weeks and he said "that would really test your faith". I said yes - but do you know I love God more now than i ever did and i trust God more now than I ever did and he got tears in his eyes and we had a great talk. (He goes to the Lutheran church in Nyngan) He invited me out to his farm to have a look over some things.
After all that we eventually got home at 9.30pm, tired but happy in the Lord for the opportunity to talk with Alan. I had forgotten how many times these little upsets and delays in our days really are God working things out for good.
Thankyou all for your prayers.
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