Monday, April 27, 2009

On Saturday Georgie was sounding rattly and chesty again. By 3am on Sunday morning she had cleared up a lot.
She had a very peaceful and restful day yesterday.
Planning to start getting Georgie home - at least in the day times hopefully from next week on.
Ange said last night she was very good and that this morning she was the most "communicative" she had heard her in terms of little noises she sometimes makes.
Our house is getting pretty close to being finished now. We now have steps so we are no longer the "house with no steps"!

Thursday, April 23, 2009

Tuesday onwards Georgie has had a good week so far this week.
Hospital and community services keen to get us home soon but they have achieved very little to actually get anything concrete done to assist us.
We have kept things moving from our end so a bit frustrating.
Hospital staff reiterated this week that they do not intend to resuscitate Georgie should any major complication arise. She really is in God's hands.
The plan is to start transitioning home so backwards and forwards from hospital a bit as needed. Will be pretty hard to let her out of sight again once she comes home though. If she is sick she can go straight back to the ward and bypass emergency and admissions.
A fundraiser to help with some of Georgie's needs went well. Ray Price and his wife Sandi and Terry leadbeater and Eric Groethe and their girlfriends all came up and helped auction off lots of football memorabilia. Ray and Sandi came out for brekky on sunday morning before they went home.
1 Chronicles 29 Davids prayer.

Friday, April 17, 2009

Friday 17th April

Georgie is back to being comfortable again.
Well it is two years today since we found ourselves with Georgie suddenly in Westmead hospital.
Many battles, quite a few scars remaining.

We had talks with the hospital today about all the logistics of getting Georgie home on the 1st May. Initially we are just looking at day leave when she is well and utilising the hospital whenever needed and even for respite. Basically there is no service provided for children as it is so rarely needed. The hospital are doing a lot of work behind the scenes. They have applied on our behalf to get a nurse at home for her. This will take a lot of negotiation as they said there is no precedent for it in the area. We would have to advertise for ourselves to get someone if there was someone who was willing. Costs are great. Fortunately a fellow called Tom has come along and all off his own bat has organised a fund raising event for Georgie at a local hotel tonight. He is a retired drover. Hopefully this will help. It has also been a big strain on us emotionally with the publicity etc that has been necessary. Please pray that God will be glorified in all of this. Pray for Tom too he is not a Christian and has bone cancer which he says is terminal. He says he is always in pain (and it is evident at times)but a funny thing happens when he goes fund raising for Georgie he said all his pain just disappears.
Ange and Em went to Katoomba Convention and they said the best thing was the caretaker there had shared his story of how he and wife had fostered kids and had fostered a girl with cerebral palsy whom nobody would take on but they and church were praying for her and now she has been healed of the condition! She is 12 and Ange said she is stunningly beautiful and she even won a 100 metre sprint the other day. This after even when she was deemed to be improving the medicos said she would always walk with a limp.
We met a lovely old aboriginal lady the other day at the hospital. As soon as I saw her I knew she would be a Christian even before she spoke so i asked her are you a believer? She said "yes i am" and for the next hour and a half we talked about our love for God, sharing and building faith. She and her husband have been pastors in places like Bourke and Condobolin for many years. She said "our God is a wonderful healing God we have seen many miracles over the years". Even a boy who had his head run over by a landcruiser was healed and could hear the following day. He'd had so much internal head injury the drs said he would be a vegetable if he ever awoke.
Well we don't understand it all. We have seen other children we have been praying for healed of various things - two with cancer and yet not our Georgie - not yet anyway.

Wednesday, April 15, 2009

Wednesday 15th

For most of Easter Georgie has had a bit of a rough time again with increased seizures and so on.
The only thing is to keep giving more sedatives as required.
It is hard work.

Monday, April 6, 2009

Monday 6th

Georgie seems to have pretty much fought off the pneumonia now. She was put onto a single course of oral anti-biotics from Monday to Friday. The dr said everybody thinks that anti-biotics fix pneumonia but that's not really true he said it's still really up to the person to fight it off and clear their own chest etc. I know plenty of people were praying too.
She slept most of last night after midnight other than when we woke her up by turning her in bed.
She has been making little sounds lately from time to time. Mostly when she has something painful like with the chest trouble but sometimes little kind of contented sighs. (I don't know what it means and I don't want to get anybodys hopes up at all and wasn't even sure whether to say anything at all - but it is just something different after total silence for two years.) A nurse commented to me last night that she had told the other nurses about this too she said she made a sound that sounded like a word. I asked her what it was and she said it sounded like "get!" Anyway sad as it all is it made me laugh. Some of the nurses are really good value.
I was reading the bible in the parent's room at the hospital at about 4.30am the other morning and these verses gave me something to think about.

"And in this I give advice; It is to your advantage not only to be doing what you began and were desiring to do a year ago; but now you also must complete the doing of it; that as there was a readiness to desire it, so there also must be a completion out of what you have"
2 Corinthians 8 v 10,11